7 months

I am behind on my blogging! Here are Ellas 7 month pics. She is getting big. 13 pounds and about 22 inches long. She recently had her bronchoscopies done, and she does have some mild tracheomalacia (floppiness of the airway) and subglottic stenosis (a very small airway about that of a 35 week preemie). The tracheomalacia she will grow out of between 18 and 24 months of age. The small airway we really don't know what will happen. She is doing well enough that right now we wont be doing anything. However as she gets bigger and becomes mobile she may not be able to move enough air. She is very far from being mobile, so fingers crossed it will just get bigger on its own.

Merry Christmas!

Life would be easier if she wasn't so smart!

For anyone who doesn't already know. The life of a preemie is always an adventure. Last week Ella was hospitalized for a high fever. Normally she would have been able to stay at the hospital I work at, but simply because she is Ella (and has a fairly lengthy respiratory arrest history) she got transferred to Primary Children's. Everything turned out fine. She had some type of a virus. I have a feeling that it likely wont be the last time something like this happens.

The thing that is really disturbing is how quickly Ella learns to distrust people. For a few days after being in the hospital she wanted to be held, and went nuts if I put her in her crib even if she was already asleep. This wasn't her first picnic... and she clearly remembers. She was this way to a lesser degree when she was in the NICU. It makes me nervous that the older she gets and the more frequent people are "mean" to her the more emotional scarring it will leave on her little psyche. It kills me that we are going back in 9 days for her scopes. The fact that as soon as she regains trust we are going right back just makes me plain sad. The scopes are unfortunately completely necessary and need to be done before she gets sick again. So I guess we have no choice.  

Rolling

She finally did it! Backwards from what I had expected tummy to back.